I have promised myself that I will use this platform, however small it may be, to promote honest communication and cooperation. It is only fair, that I, as a host, start first: I would like to share a personal story that has brought me very close to a cause that is becoming more and more urgent as the years pass.
Let me start at the beginning. My sister Andy’s son, Vassilis, now seventeen, was born with Angelman Syndrome, a rare genetic disorder that affects the nervous system and causes severe physical and learning disabilities. Vassilis is a happy young man who enjoys cooking, horse riding and swimming. A great big brother to Stamatis and Orestis, he loves being surrounded by his family and friends, and we are all immensely proud at the progress he has made.
Vassilis has always been involved in many activities and has never been left behind. We are happy he attended school for the children with special needs and had an active and happy childhood. However, as his eighteenth birthday approaches, we are faced with another challenge – what happens once Vassilis is an adult and no more eligible for the level of care provided to children?
Please follow the link to learn to hear more about it from Andy!